Sunday, October 24, 2010

Our Cerebral Palsy Girl Jumps!

We saw Lindy jump for the first time this week!  Actually jump.  With two feet off the ground!  She’s been close for a long time but we had never seen her get both feet up.  She usually leaves her toes on her right foot on the ground.  Our girl with Grade III and IV brain bleeds (IV being the worst) which in turn caused hydrocephalus and cerebral palsy has jumped!  We honestly had no clue when we brought her home if she would even sit up.  She has exceeded every expectation we had for her.  She might be pretty delayed – but she hits the milestones and that is all we care about!

We had another busy week that went by fast.  Don’t they all go by fast?

Monday I had another parent session with Lindy and her teacher but Lindy was NOT into working that day.  Her teacher said she had worked hard and was acting pretty tired.  We tried but she was not into it.  She was trying to get Lindy to say action words.  Sleeping, clapping, swinging, etc.  ‘ing’ words.  She said she cannot get Lindy to use them.  The thing is that she does say them at home.  Not all the time but we do here ‘ing’ words.  Her teacher also said she hasn’t heard Lindy say the ‘s’ at the end of a possessive, for  instance, Daddy’s chair, Mommy’s purse.  Again, we hear Lindy say this ‘s’ at home.  I honestly wonder if her teacher just doesn’t hear it.  Lindy has such a soft voice and is in a class with other kids which I’m sure gets loud.  Or she is just being ornery and not showing her teacher everything she knows how to do. 

One interesting thing her teacher showed me was some of the informal testing she has been doing on Lindy.  Her receptive language, what she understands, came out as 3 years and 11 months!  Wow! Her expressive language, what she says, was at 2 years and 4 months.  On one hand I think that is great seeing as she was hardly talking in May of this year.  On the other hand I think that is low because like I said, she won’t say things to  her teacher that she says at home.  In any case the combined score was 3 years and 1 month which is awesome!

Besides jumping, Lindy has FINALLY learned her colors.  I was really beginning to wonder if she was color blind like her daddy.  She has been able to match colors for awhile now but could not reliably tell you the correct color of anything.  I’ll give credit to her teachers because we’ve tried and tried to teach her and she never caught on. Now she tells us the color of everything!!  It’s so cute!  We’re so proud of our girl!

Wednesday I had an IEP meeting with Will’s speech teacher.  Because we moved from another county, they did a continuation of services to get them going in school.  We had to meet to get the IEP up to snuff for the new county and we also had to meet because he met all his goals on his old IEP.  His goals were to use one or two words to ask for what he wants.  Ummm, yeah, he uses whole sentences to tell us what he wants.  (He has stopped asking politely for things and has instead started telling us what to do.  Yeah, we’re working on going back to asking nicely.)  We got his IEP written with new goals, which include being able to name categories and a few other things.  We also did the paperwork to request testing.  His teacher is going to start testing him in the beginning of Nov. and then he can hopefully exit the program.

Thursday evening was a busy one for us.  Lindy and Will got to play with Uncle Ed and Molly for a little bit while Drew and I went to look for a new car.  Drew’s car finally bit the dust and we’ve been sharing a car.  They walked down to the park which I know they loved.   After picking them up we went to Lindy’s school because it was curriculum night.  We were the only parents there from Lindy’s class but that just gave us a chance to ask her teacher questions about how she is doing.  We also got to meet the principal, who apparently Lindy loves.  The first time he came in to do an observation on Lindy’s teacher the kids all clammed up and wouldn’t say or do anything.  He has started spending bits of time in there so the kids will all be familiar with him.  Apparently Lindy always goes and gets him and leads him around and has him join in everything they are doing.  One day she had him singing and dancing with them!  Crazy girl.  She is already brown-nosing! 

Friday evening we had two couples over for dinner.  Neither of them have kids so we fed ours early and then turned the TV on for them.  A special treat for them!  Lindy kept coming in the dining room and then would go play for awhile.  We were having an enjoyable conversation until Lindy came in and wanted to sit with me.  I picked her up and she wanted a piece of my bread.  The next thing I know she threw up a little bit on me and then she gushed all over me.  What a party foul.  It smelled so bad and I was so embarrassed  I hadn’t planned on giving her a bath that night but she had it in her hair and it smelled bad.  That will probably make them wait a little longer to have kids! 

This post was a little Lindy heavy but I guess there was just more info on her this week.  Will is doing fine.  He got to pick out the ‘perfect pumpkin’ at preschool this week.  He has turned into a bossy little thing.  Sometimes I miss the days when he didn’t talk so much.  You tell him to stop doing something and he always says, “But I just want……..”  Will, stop slapping your sister.  But I just want to slap my sister.  I’d be fine if I never heard, “But I just want to…..” ever again!

A few pictures of the week.

One of Will’s preschool creations.DSC_3492 Lindy showing me her hand print apple tree.DSC_3517 We tried painting this week.  I’ve never wanted to deal with the mess but I sucked it up this week and let them paint.DSC_3518DSC_3522 Pillows are still the best toy in our house these days.  They love to ‘hide’ under them.DSC_3526 DSC_3525 DSC_3528DSC_3537 Will and his perfect pumpkin.DSC_3542 DSC_3540 Get a load of this.  Can you stand it?  She’s SO CUTE.  I can barely stand it myself!DSC_3553 Skull and cross bones pants, shirt, and bows.  Cuteness overload!DSC_3545 After I took her picture she went and found Drew and led him back to the steps to sit and get their picture taken.DSC_3554 Watch out, here comes the ‘Big and Bad’ werewolf.  DSC_3555 Apparently Lindy was in a really good mood that morning!DSC_3556 “I’m big and bad!”DSC_3560 I’m a little scared around our house because I think it’s haunted.  I keep seeing ghosts.  DSC_3640 I saw this one too.DSC_3646 But the scariest one I’ve seen was the two-headed (albeit one much shorter head) ghost.DSC_3649 Oh wait, they aren’t real ghosts.  It’s just LindyDSC_3648 and Will!DSC_3653

Tuesday, October 19, 2010

Lindy and Potty Training

I thought I would give an update on Lindy and potty training.  How’s it going, you may ask? 

DSC_3483 DSC_3463 DSC_3464 DSC_3465 DSC_3466 DSC_3467 DSC_3468 DSC_3469 DSC_3470 DSC_3471 DSC_3473 DSC_3474 DSC_3475 DSC_3476 DSC_3477 DSC_3478DSC_3482  

Not so well!  She basically refuses to go on the potty and whines and cries when I put her on it.  Yet every once in awhile she will tell me she needs to potty????  As soon as I get her and head towards the potty she says, “No potty.  No potty.”  She might be the kid who goes to kindergarten in diapers!

Sunday, October 17, 2010

A Weekend of Fun With Nana and Papa

We had a full week of school last week.  I’m glad the kids are in school but it puts a crimp in our our social calendar!  I think a four day school week would be perfect!

I had a parent session with Lindy and her teacher on last Monday and for the first time she did a great job at her parent session.  She rocked all her speech babble, even the new ones her teacher made up.  Then she did awesome at picking three critical elements.  Something we’ve worked on for SOOOO long and she was never consistent at it.  It seems like it might be starting to click!  Yay!!

Wednesday morning Will had speech therapy and Wednesday afternoon we had music class.  The kids got rain makers that they enjoyed making noise with this week.  We have to make our own rain makers this week for class.

My parents drove down Thursday afternoon and rolled in around 1am that morning.  They greeted the kids when they woke up Friday morning.  Unfortunately it was a school day so we got up and around as normal.  My mom and I took Lindy to school and Will to speech and then we came home for a bit.  We loaded back up to go pick Lindy  up from school and went out for lunch.  Drew headed out of town for the weekend and the kids and I played with Nana and Papa all weekend.  After naptime on Friday we headed out to dinner and enjoyed a pumpkin Krispy Kreme doughnut.  Yummy!

Saturday was my Mom’s birthday!  Happy birthday Mom!  We were so excited we got to help you celebrate.  We headed out for lunch and then we went to Patterson Farms to the pumpkin patch.  I was shocked at how many people were at this farm!  We looked at and fed some goats first and then got in a wagon to go on a little ride to the pumpkins.  It still wasn’t a true pumpkin patch as the pumpkins were all brought to one place and not out in the patch on vines.  But it was still neat.  You could stay out in the little field as long as you wanted and catch a wagon whenever you wanted to head back.  We got the kids pumpkins and headed back.  Then they had a big play area for the kids that we spent awhile in.  They had some playground equipment and the most fun thing was the corn pits.  It was a big sandbox but it was filled with corn.  Will jumped in and loved it from the start but Lindy did not like it at first.  She hated it until I started playing with it.  She ended up LOVING it!  They had so much fun!  We finally left the pumpkin patch and drove around the area and headed for dinner to celebrate Nana’s birthday.  The kids were so wired the whole way home.  Will was seriously screaming “Happy Birthday” at my mom.  We got home and had some birthday cake and put those crazy kids to bed!

My parents left today and Drew got back home this afternoon.  It was SOO nice having the company and help while Drew was gone.  It worked out so well that it was my mom’s birthday and we got to celebrate with her.  Once Drew got home we headed outside to enjoy the beautiful weather. 

Back to the school week bright and early tomorrow morning!

We tried some painting outside one day.DSC_3055 Will found a new game of running through the swings and hitting them with his golf clubs.DSC_3063 DSC_3065 The kids LOVE going down the hill in the little red wagon in our backyard.  DSC_3078 DSC_3090 DSC_3091 DSC_3095 DSC_3103 Will made a pumpkin crown in school this week.DSC_3108 Playtime with Daddy!DSC_3124 DSC_3130 The kids also love the pillows on the couch.  They love to hide under them.DSC_3133 DSC_3132 Covering Daddy and then laying on him.DSC_3134 Checking out the Halloween decorations.DSC_3159 DSC_3163Thursday afternoon we went to the park.  It was really fun until Will fell and skinned his knee and elbow and then had a little poop accident in his britches.  Other than that it was a blast!DSC_3166  A little static on the slides!DSC_3168 DSC_3176 Snuggling with Nana after his nap.DSC_3186 Cute Halloween kids.  DSC_3202 Happy Birthday Nana!  Helping her open her presents.DSC_3218 Waiting in line for the wagon out to the pumpkins.DSC_3244 Riding out to the pumpkins.DSC_3248 DSC_3250 DSC_3253 Pumpkins!DSC_3261 DSC_3265 DSC_3270  DSC_3287 Lindy taking a rest on a pumpkin!DSC_3294 DSC_3297 Hugging a pumpkin!DSC_3303 DSC_3316 DSC_3328 DSC_3339 Our short kids!  I think Lindy is taller than what it looks like, her knees are bent.DSC_3353 Trying to get Lindy to stand still.  Didn’t happen.DSC_3359 Corn pit!DSC_3377 DSC_3380 DSC_3386 DSC_3387DSC_3394DSC_3399  Riding high!DSC_3420    They were SO wired!DSC_3427 DSC_3434 Happy Birthday Nana!DSC_3441 Reading the kids their night-night books.DSC_3443 DSC_3455 DSC_3457 DSC_3461

Wow, that’s a lot of pictures.  But that was only 52 of the 363 I took last week.  Just be glad I didn’t put all 363 on here!