We got a cold. Will's nose started running yesterday (Tuesday) around 6pm. He sneezed all night and didn't sleep well at all. (Neither did we.) I took him to the doctor and everything checked out okay, just looks like a cold. He's been home 11 months and this is his first cold. I was beginning to think we were invincible!!
I'm doing everything in my power to keep Lindy away from him. I've created two separate play areas in the living room. We are washing hands and hand sanitizing like crazy. I hate Will got a cold but I really don't want Lindy getting it. I have nightmares of her going back on oxygen!
Keep your fingers crossed Lindy doesn't get it! I better get back to my snotty nose baby!
Wednesday, October 8, 2008
Saturday, October 4, 2008
Busy Week Behind Us
If last week was a calm week, this week was about the opposite. We, well Lindy, had something every single day this week!
Monday she had occupational therapy. She watched her eat and overall she is doing well. She said the little thing under her tongue is a little tight. She gave me some new tool to get under her tongue and stretch it out. She also worked with her on the straw bottle. She said Lindy is pretty close. She assured me that they both would start sucking before too long. Well Will is finally getting the hang of it. He's finally started closing his lips around the straw and in the last day or two he looks like he is starting to suck! I'm just going to keep at it with Lindy and hopefully she'll have it in no time. Her problem is that she feels the need to bite the straw or put her fingers in her mouth with the straw. Makes sucking hard!
Tuesday we went to the eye doctor. The appointment was pretty easy, he didn't do much. We did order new frames for her this time. We made them much much stronger (-19.0 and -11.0). Those bad boys aren't cheap. We're going to have to watch her like a hawk to make sure she doesn't put little teeth scratches in this set!
Wednesday we had Governor Morehead and Thursday we had the Deaf and Hard of Hearing program. Both were good visits.
Friday was the big day (see post below for what and why Lindy had 3 appointments with nephrology). We had to leave the house at 7:45am to get to her first appointment. The first one was the VCUG. It was not fun. They strapped her to the 'baby board' with these big velcro straps. They had her arms up over her head, straped down as well. She was mad as fire! I got to be up by her head with her but she couldn't see or hear me. I just kept stroking her face and holding her hands. I was so worried she would throw up (which she often does when she gets really mad), but thankfully she didn't. When we went in we knew she had Grade 3 kidney reflux on the right. Yesterday they found Grade 2 on both sides. Good and bad I guess. The right side has gotten better but now they found it on the left. The doctor did say that it could have been there all along, that she might have been too small the first time they did the VCUG (back in Nov. 2007). They have to fill the bladder up very full and they might not have been able to do that back then. The good news is that most Grade 2 reflux issues will resolve themselves by the time kids are getting ready to go to school. Lindy has been on a prophylactic antibiotic since she got the first UTI and will continue to be on this antibiotic until the reflux is gone.
Next was the renal ultrasound which is an easy test. Just like pregnant ladies getting their ultrasounds. It's fast and easy. Unfortunately the results weren't exactly the best in the world. They have always told us that her right kidney is smaller then her left kidney. Unfortunately her right kidney has not grown in the last 6 months. Fortunately her left kidney has. So there are some questions as to how well her right kidney is working or if it is working at all. We have to go for another renal ultrasound in 4 months to look to see if they have grown. People can live with one kidney. People donate kidneys all the time, but obviously I'd prefer if both of her kidneys were working.
The next appointment was the appointment with the nephrologist to go over the test results. He explained everything to us and ordered blood work for her. They collected a urine sample and then Drew took her to get her blood drawn. He said the lady was really nice and Lindy did well. They did it very quickly. Unfortunately the doctor called later that afternoon and said her urine looked fine but that there was a labeling error and the lab wouldn't run the blood. She got this blood drawn for NOTHING! Kind of frustrating because I think at some point she'll have to have it drawn again. They did weigh her at this appointment. They said she was 17 pounds 3 ounces. They also said she was a little over 26 inches long. At their one year appointment she was only 24 1/2 inches long! I think she has hit a growth spurt. Which explain why some pants I thought would fit are a little short!
After we were done with her nephrology appointments we went by the hearing department and picked up new ear molds for her hearing aides. We finally got back home at 1pm. Lindy had a 15 minute cap nap and was doing fine. Drew and I were exhausted!
Glad it's all over with, that's for sure. Will has had a pretty quiet week. He is starting to stand a lot more by himself. I cannot get a picture of it though. His new standing habit has led to some recent falls. His face has taken a beating this week from the floor! He takes a licking and keeps on ticking though. One day he was crying pretty hard, until he saw the cords for the ceiling fan and then he completely forgot about crying. Too funny!
Here are pictures from this week.
Grandbob, Suzette, and Molly came up before the Wake Forest game last weekend. We ate and celebrated Grandbob's birthday. Will loves his Grandbob!
Grandbob and his little Deacon fans. We took the babies to the game, the ugly game that Wake lost :(
Enjoying the view from the front door.
Sporting some twin gear.
New cute pajamas.
For anyone going to the Dixie Classic Fair, don't forget to stop by Booth 10 for some good Palmyra UMC food! You may find me or Drew working this week!
Monday she had occupational therapy. She watched her eat and overall she is doing well. She said the little thing under her tongue is a little tight. She gave me some new tool to get under her tongue and stretch it out. She also worked with her on the straw bottle. She said Lindy is pretty close. She assured me that they both would start sucking before too long. Well Will is finally getting the hang of it. He's finally started closing his lips around the straw and in the last day or two he looks like he is starting to suck! I'm just going to keep at it with Lindy and hopefully she'll have it in no time. Her problem is that she feels the need to bite the straw or put her fingers in her mouth with the straw. Makes sucking hard!
Tuesday we went to the eye doctor. The appointment was pretty easy, he didn't do much. We did order new frames for her this time. We made them much much stronger (-19.0 and -11.0). Those bad boys aren't cheap. We're going to have to watch her like a hawk to make sure she doesn't put little teeth scratches in this set!
Wednesday we had Governor Morehead and Thursday we had the Deaf and Hard of Hearing program. Both were good visits.
Friday was the big day (see post below for what and why Lindy had 3 appointments with nephrology). We had to leave the house at 7:45am to get to her first appointment. The first one was the VCUG. It was not fun. They strapped her to the 'baby board' with these big velcro straps. They had her arms up over her head, straped down as well. She was mad as fire! I got to be up by her head with her but she couldn't see or hear me. I just kept stroking her face and holding her hands. I was so worried she would throw up (which she often does when she gets really mad), but thankfully she didn't. When we went in we knew she had Grade 3 kidney reflux on the right. Yesterday they found Grade 2 on both sides. Good and bad I guess. The right side has gotten better but now they found it on the left. The doctor did say that it could have been there all along, that she might have been too small the first time they did the VCUG (back in Nov. 2007). They have to fill the bladder up very full and they might not have been able to do that back then. The good news is that most Grade 2 reflux issues will resolve themselves by the time kids are getting ready to go to school. Lindy has been on a prophylactic antibiotic since she got the first UTI and will continue to be on this antibiotic until the reflux is gone.
Next was the renal ultrasound which is an easy test. Just like pregnant ladies getting their ultrasounds. It's fast and easy. Unfortunately the results weren't exactly the best in the world. They have always told us that her right kidney is smaller then her left kidney. Unfortunately her right kidney has not grown in the last 6 months. Fortunately her left kidney has. So there are some questions as to how well her right kidney is working or if it is working at all. We have to go for another renal ultrasound in 4 months to look to see if they have grown. People can live with one kidney. People donate kidneys all the time, but obviously I'd prefer if both of her kidneys were working.
The next appointment was the appointment with the nephrologist to go over the test results. He explained everything to us and ordered blood work for her. They collected a urine sample and then Drew took her to get her blood drawn. He said the lady was really nice and Lindy did well. They did it very quickly. Unfortunately the doctor called later that afternoon and said her urine looked fine but that there was a labeling error and the lab wouldn't run the blood. She got this blood drawn for NOTHING! Kind of frustrating because I think at some point she'll have to have it drawn again. They did weigh her at this appointment. They said she was 17 pounds 3 ounces. They also said she was a little over 26 inches long. At their one year appointment she was only 24 1/2 inches long! I think she has hit a growth spurt. Which explain why some pants I thought would fit are a little short!
After we were done with her nephrology appointments we went by the hearing department and picked up new ear molds for her hearing aides. We finally got back home at 1pm. Lindy had a 15 minute cap nap and was doing fine. Drew and I were exhausted!
Glad it's all over with, that's for sure. Will has had a pretty quiet week. He is starting to stand a lot more by himself. I cannot get a picture of it though. His new standing habit has led to some recent falls. His face has taken a beating this week from the floor! He takes a licking and keeps on ticking though. One day he was crying pretty hard, until he saw the cords for the ceiling fan and then he completely forgot about crying. Too funny!
Here are pictures from this week.
How I found Lindy during a nap last week. She went to bed with the shirt on correctly!
Grandbob, Suzette, and Molly came up before the Wake Forest game last weekend. We ate and celebrated Grandbob's birthday. Will loves his Grandbob!
Grandbob and his little Deacon fans. We took the babies to the game, the ugly game that Wake lost :(
Enjoying the view from the front door.
Sporting some twin gear.
New cute pajamas.
For anyone going to the Dixie Classic Fair, don't forget to stop by Booth 10 for some good Palmyra UMC food! You may find me or Drew working this week! Thursday, October 2, 2008
Friday Morning
Think of Lindy tomorrow, Friday morning, as she has a morning full of appointments to check on her kidney reflux. They discovered in the NICU that she had Grade 3 kidney reflux. Urine normally flows in one direction—down from the kidneys, through tubes called ureters, to the bladder. Vesicoureteral reflux (VUR) is the abnormal flow of urine from the bladder back into the ureters. It was most likely caused from the urinary tract infection she had while in the NICU.
The great majority of children with reflux outgrow this over the course of several years. Reflux is divided into grades I, II, III, IV, and V. In children with grades I and II, 80% will resolve spontaneously by school age. Spontaneous resolution is progressively less common in grades III and IV (only about 10% of grade IV involving both sides), and rare in grade V.
Tomorrow Lindy will have the following done:
1.)Kidney and bladder ultrasound: This test shows shadows of the kidney and bladder that may point out certain abnormalities.
2.)Voiding cystourethrogram (VCUG): A test that examines the urethra and bladder while the bladder fills and empties. A liquid that can be seen on x rays is placed in the bladder through a catheter. Pictures are taken when the bladder is filled and when the child urinates. This test can reveal abnormalities of the inside of the urethra and bladder. The test can also determine whether the flow of urine is normal when the bladder empties.
3.) Blood drawn.
The ultrasounds are easy (she had that done about 6 months ago). Having blood drawn and getting her to lay still for the VCUG will not be so much fun.
Think of her tomorrow!!
The great majority of children with reflux outgrow this over the course of several years. Reflux is divided into grades I, II, III, IV, and V. In children with grades I and II, 80% will resolve spontaneously by school age. Spontaneous resolution is progressively less common in grades III and IV (only about 10% of grade IV involving both sides), and rare in grade V.
Tomorrow Lindy will have the following done:
1.)Kidney and bladder ultrasound: This test shows shadows of the kidney and bladder that may point out certain abnormalities.
2.)Voiding cystourethrogram (VCUG): A test that examines the urethra and bladder while the bladder fills and empties. A liquid that can be seen on x rays is placed in the bladder through a catheter. Pictures are taken when the bladder is filled and when the child urinates. This test can reveal abnormalities of the inside of the urethra and bladder. The test can also determine whether the flow of urine is normal when the bladder empties.
3.) Blood drawn.
The ultrasounds are easy (she had that done about 6 months ago). Having blood drawn and getting her to lay still for the VCUG will not be so much fun.
Think of her tomorrow!!
Wednesday, October 1, 2008
Coats
Coats! Coats! Coats! We've now got coats!!! Mommy bought us lots of coats. Too many coats, she has to return a couple now!!
Thanks for the ideas. I never go to the mall so I hadn't even thought about it. Lindy and I had a successful shopping adventure yesterday!
Thanks for the ideas. I never go to the mall so I hadn't even thought about it. Lindy and I had a successful shopping adventure yesterday!
Friday, September 26, 2008
Goodbye Summer, Hello Fall
First thing, I've obviously been messing with my blog. When I open it you can see the font just fine. Please let me know if you ever have a problem reading it. If you know me or have seen nursery pictures, then you know that I have been all about some pink and blue and brown polka dots. When I saw this background I just had to have it!
Secondly, this has been the quietest week we've had in a long time! Not a single appointment or person coming to the house. We had two scheduled for this week, OT and the deaf and hard of hearing teacher, but both got cancelled. I'm not really sure when the last time we had a completely free week was.
But we did get to have a little fun this week. Last Saturday we went to the NC Chili Championship and Rubber Duck Regatta. This was a March of Dimes event. We got to taste a lot of chili and none of our 20 ducks won the regatta. The weather was nice and we all enjoyed a day out of the hosue.
Tuesday we went to town and ran some errands. Did a little birthday shopping for a special person named GrandBob. Happy Birthday GrandBob!!! The kiddos can't wait to see you tomorrow and give you their present. After our errands we went out for lunch and both kids sat in big kid high chairs! It was the first time for Lindy and only the second time for Will. I never have my camera when we eat out so I've yet to get pictures of this. They are pretty cute! Lindy slid down a bit but otherwise did good.
Wednesday we got out for a little park date with Mary Allen, Conner, and Tyler. We met at a park in King and got to have a picinic lunch. It was nice to get out and enjoy some fresh air. It was a little windy from the recent nor'easter we've had blow through but it was otherwise a perfect fall day. The kids got to swing again and enjoyed it just as much this time.
Thursday we had a special visitor come see us. Cheri, one of our favorite NICU nurses, came to visit the babies! She was one of Will's primary nurses and we have missed her. I have recently been watching some of the video tapings I made while in the NICU and Cheri's voice was on there a few times. She was my videographer for the first time I ever held Will and the first time Lindy got a bottle. Cheri was always the best for letting us pick Will up while she changed his bed sheets. We got to 'hold' him like that quite a few times when she was around and we loved it! She brought the babies a really cool new toy for their birthday and she brought me some yummy streusel cakes! She remembered they are one of my favorite snacks. She's so sweet. We loved our visit with her. When you spend 9 hours every day hanging around the NICU for a few months you get to know the nurses. Of course you are happy to get your babies home but you do kind of miss those people when you leave! We hope we get to see her again soon. We'd love to see some of our other nurses sometime too!
That wraps up our week. It was all fun this week for us. I even got to go to town to do a bit of shopping today while Drew watched the babies. He's been letting me get away from the house for a day in town every couple weeks. I really need these breathers and he's been great about letting me go. What a great guy! I was on the hunt for jackets (lightweight and winter) today. Didn't seem to really find what I was looking for. Those of you with kids, where do you get your jackets?
Have a great weekend. If the weather clears up tonight/tomorrow then the babies will be attending their second Wake Forest game tomorrow. Go Deacs!
Without further ado, this week's pictures.
The chili championship.
This is the best picture to sum up how Lindy feels about Will. She LOVES him! She always smiles at him when he gets near her. No matter if he is taking her toys or pacifier, knocking her glasses off, or whacking her in the head, she usually just smiles at him. She loves her little brother!
Another new outfit!
Lindy's newest smile. She squeezes her eyes shut, looks down, and smiles. It's so cute but makes it hard to get pictures of her smiling!
This one is the devil in disguise. Can't you just see his mischevious grin!
Nurse Cheri and the babies.
The babies playing with the toy Cherri got them. It's perfect for them. How did she know that I had been wanting this toy?
Have you ever seen Lindy in a pair of zip-up pajamas? NOPE. That's because she wore her first pair this week. Last winter she could never wear them because she always had a sensor on her foot that told us her oxygen saturations. There was nowhere for the cords to come out in zippered pajamas. But since we are oxygen and cord free these days, she can wear pajamas with zippers. It's the little things that you take for granted but that make me excited!
A couple of caged monkeys!
More new outfits! Sadly Will's is already too small. He had his high water pants on today.
Secondly, this has been the quietest week we've had in a long time! Not a single appointment or person coming to the house. We had two scheduled for this week, OT and the deaf and hard of hearing teacher, but both got cancelled. I'm not really sure when the last time we had a completely free week was.
But we did get to have a little fun this week. Last Saturday we went to the NC Chili Championship and Rubber Duck Regatta. This was a March of Dimes event. We got to taste a lot of chili and none of our 20 ducks won the regatta. The weather was nice and we all enjoyed a day out of the hosue.
Tuesday we went to town and ran some errands. Did a little birthday shopping for a special person named GrandBob. Happy Birthday GrandBob!!! The kiddos can't wait to see you tomorrow and give you their present. After our errands we went out for lunch and both kids sat in big kid high chairs! It was the first time for Lindy and only the second time for Will. I never have my camera when we eat out so I've yet to get pictures of this. They are pretty cute! Lindy slid down a bit but otherwise did good.
Wednesday we got out for a little park date with Mary Allen, Conner, and Tyler. We met at a park in King and got to have a picinic lunch. It was nice to get out and enjoy some fresh air. It was a little windy from the recent nor'easter we've had blow through but it was otherwise a perfect fall day. The kids got to swing again and enjoyed it just as much this time.
Thursday we had a special visitor come see us. Cheri, one of our favorite NICU nurses, came to visit the babies! She was one of Will's primary nurses and we have missed her. I have recently been watching some of the video tapings I made while in the NICU and Cheri's voice was on there a few times. She was my videographer for the first time I ever held Will and the first time Lindy got a bottle. Cheri was always the best for letting us pick Will up while she changed his bed sheets. We got to 'hold' him like that quite a few times when she was around and we loved it! She brought the babies a really cool new toy for their birthday and she brought me some yummy streusel cakes! She remembered they are one of my favorite snacks. She's so sweet. We loved our visit with her. When you spend 9 hours every day hanging around the NICU for a few months you get to know the nurses. Of course you are happy to get your babies home but you do kind of miss those people when you leave! We hope we get to see her again soon. We'd love to see some of our other nurses sometime too!
That wraps up our week. It was all fun this week for us. I even got to go to town to do a bit of shopping today while Drew watched the babies. He's been letting me get away from the house for a day in town every couple weeks. I really need these breathers and he's been great about letting me go. What a great guy! I was on the hunt for jackets (lightweight and winter) today. Didn't seem to really find what I was looking for. Those of you with kids, where do you get your jackets?
Have a great weekend. If the weather clears up tonight/tomorrow then the babies will be attending their second Wake Forest game tomorrow. Go Deacs!
Without further ado, this week's pictures.
Will obviously thought he needed to help out with Lindy's bath.
The chili championship.
This is the best picture to sum up how Lindy feels about Will. She LOVES him! She always smiles at him when he gets near her. No matter if he is taking her toys or pacifier, knocking her glasses off, or whacking her in the head, she usually just smiles at him. She loves her little brother!
Another new outfit!
Lindy's newest smile. She squeezes her eyes shut, looks down, and smiles. It's so cute but makes it hard to get pictures of her smiling!
This one is the devil in disguise. Can't you just see his mischevious grin!
Nurse Cheri and the babies.
The babies playing with the toy Cherri got them. It's perfect for them. How did she know that I had been wanting this toy?
Have you ever seen Lindy in a pair of zip-up pajamas? NOPE. That's because she wore her first pair this week. Last winter she could never wear them because she always had a sensor on her foot that told us her oxygen saturations. There was nowhere for the cords to come out in zippered pajamas. But since we are oxygen and cord free these days, she can wear pajamas with zippers. It's the little things that you take for granted but that make me excited!
A couple of caged monkeys!
More new outfits! Sadly Will's is already too small. He had his high water pants on today.
Friday, September 19, 2008
Bluegrass and New Hearing Aides
We have had a good week. They go by so quickly. Thanks for all the comments. It is nice to know people are still reading. I wasn't going to continue on if no one was reading! I'm glad we have our regulars and I so wish I knew who all the anonymous people were :)
Last Sunday we took a little family adventure to Greensboro to listen to some bluegrass music. Drew had heard these two women sing recently and he found out they are a group called Polecat Creek. When we saw they were going to be in Greensboro we decided to go. It turned out to be one of the nicest afternoons we have had in a long time. The group played on the back porch of this old historic mansion and we all sat in the backyard. There was a huge oak tree providing lots of shade and a great breeze which was nice since it was actually very hot out. We sat on our blanket and we all had a great time. The babies loved being outside and checking out the new surroundings and we enjoyed the music. The babies sure do garner a lot of attention. It still surprises me how much attention they get. We personally think it's because they are so stinking cute!
Monday Lindy had a physical therapy appointment. We really like our therapist. One reason I like her so much is she likes Lindy so much! She started working with the babies in the NICU, back when you would barely touch them and they would desat. She can't believe the progress Lindy has made and can't believe how well she is doing for a child with Grade 3 and Grade 4 brain bleeds (4 is the worst you can have). She gave me more helpful hints on how to help her sit up straighter and I really feel like they are helping this week. She also worked with her on crawling and she said Lindy isn't too far away. Two crawlers might rock my world; one is bad enough! She will see her again in 2 months to reevaluate her. She said if Lindy starts to plateau or she is on the cusp of walking we might need to increase her PT visits. But right now she is progressing really well and nowhere near walking so we can stick to every 2 months just to check her.
Wednesday we had a little party at our house. Lindy's deaf and hard of hearing teacher, her vision teacher, and our early intervention specialist were all at the house at the same time. Leslie our vision teacher brought us the coolest trays. I have been looking for something to use to put objects up higher for Lindy. This is definitely one of the reasons why she doesn't sit up as straight as possible because she is always hunched over to see something on the floor. Leslie found these trays that are the perfect height for her. We've used them the rest of the week and I love them! I think they really help. Of course I have to supervise Will or he is liable to pick it up and body slam Lindy with it!
Thursday we headed to town for a hearing appointment but before that we stopped by our friend Lauren's house and got to meet little Isabelle. She is a cutie! Lauren adopted her from Guatemala. It was nice to meet the little one I've been reading about for awhile!
The hearing appointment went really well. We got new hearing aides! They are smaller than her other ones which is really cool. They are a brand new model and the company was nice enough to trade them out for us. We hope it helps with the flopping issue. The only thing I don't like is that they are not all pink. They have to switch out the bottom piece and replace it with a piece that works with our FM system. This FM system piece doesn't come in pink yet. So most of the hearing aid is pink and the bottom is a tan color. But since this is a new model we are hoping they are working on getting the other colors and can switch as soon as a pink one is made. They also gave us a new device to help try and keep them on her ears better. It is a little plastic tube that hooks on the hearing aid and wraps around her ear. They do seem to help a little bit. We're willing to try anything! Although she actually does a lot better with the hearing aides these days. Now if she would just leave her glasses alone! Back to her appointment, she did great. They did ear specific testing and they were able to get everything they needed. Someone asked me recently and I guess I have never said, but her hearing is the same in both ears. She has a moderate loss in the low frequencies and it slopes off to a severe loss in the high frequencies. Up until now we have assumed her hearing was the same but the testing we did on Thursday confirmed our suspicions.
That sums up our week. Hope you all have a lovely weekend. We are going to a March of Dimes fundraiser tomorrow - a chili championship and rubber duck regatta! Looks like it will be a nice day for an afternoon out.
Little man enjoyed it too.
New cute fall clothes for the babies. Check out the shoes. HOW CUTE! I've just recently discovered baby shoes and it could become a dangerous addiction!
We took an afternoon stroll in a new little wagon. They were so funny. Lindy loved being so close to Will!
It was a little cramped but they had fun in it!
The babies were playing a little game of Simon on our cool new tray today. Look at how straight Lindy's back is.
An example of Lindy sitting up better these days. Also a picture of her new hearing aides, although you can't really see that the bottom is a tan color because there is a plastic piece covering it. Not sure how well you can see the little plastic tube that wraps around her ear either.
Last Sunday we took a little family adventure to Greensboro to listen to some bluegrass music. Drew had heard these two women sing recently and he found out they are a group called Polecat Creek. When we saw they were going to be in Greensboro we decided to go. It turned out to be one of the nicest afternoons we have had in a long time. The group played on the back porch of this old historic mansion and we all sat in the backyard. There was a huge oak tree providing lots of shade and a great breeze which was nice since it was actually very hot out. We sat on our blanket and we all had a great time. The babies loved being outside and checking out the new surroundings and we enjoyed the music. The babies sure do garner a lot of attention. It still surprises me how much attention they get. We personally think it's because they are so stinking cute!
Monday Lindy had a physical therapy appointment. We really like our therapist. One reason I like her so much is she likes Lindy so much! She started working with the babies in the NICU, back when you would barely touch them and they would desat. She can't believe the progress Lindy has made and can't believe how well she is doing for a child with Grade 3 and Grade 4 brain bleeds (4 is the worst you can have). She gave me more helpful hints on how to help her sit up straighter and I really feel like they are helping this week. She also worked with her on crawling and she said Lindy isn't too far away. Two crawlers might rock my world; one is bad enough! She will see her again in 2 months to reevaluate her. She said if Lindy starts to plateau or she is on the cusp of walking we might need to increase her PT visits. But right now she is progressing really well and nowhere near walking so we can stick to every 2 months just to check her.
Wednesday we had a little party at our house. Lindy's deaf and hard of hearing teacher, her vision teacher, and our early intervention specialist were all at the house at the same time. Leslie our vision teacher brought us the coolest trays. I have been looking for something to use to put objects up higher for Lindy. This is definitely one of the reasons why she doesn't sit up as straight as possible because she is always hunched over to see something on the floor. Leslie found these trays that are the perfect height for her. We've used them the rest of the week and I love them! I think they really help. Of course I have to supervise Will or he is liable to pick it up and body slam Lindy with it!
Thursday we headed to town for a hearing appointment but before that we stopped by our friend Lauren's house and got to meet little Isabelle. She is a cutie! Lauren adopted her from Guatemala. It was nice to meet the little one I've been reading about for awhile!
The hearing appointment went really well. We got new hearing aides! They are smaller than her other ones which is really cool. They are a brand new model and the company was nice enough to trade them out for us. We hope it helps with the flopping issue. The only thing I don't like is that they are not all pink. They have to switch out the bottom piece and replace it with a piece that works with our FM system. This FM system piece doesn't come in pink yet. So most of the hearing aid is pink and the bottom is a tan color. But since this is a new model we are hoping they are working on getting the other colors and can switch as soon as a pink one is made. They also gave us a new device to help try and keep them on her ears better. It is a little plastic tube that hooks on the hearing aid and wraps around her ear. They do seem to help a little bit. We're willing to try anything! Although she actually does a lot better with the hearing aides these days. Now if she would just leave her glasses alone! Back to her appointment, she did great. They did ear specific testing and they were able to get everything they needed. Someone asked me recently and I guess I have never said, but her hearing is the same in both ears. She has a moderate loss in the low frequencies and it slopes off to a severe loss in the high frequencies. Up until now we have assumed her hearing was the same but the testing we did on Thursday confirmed our suspicions.
That sums up our week. Hope you all have a lovely weekend. We are going to a March of Dimes fundraiser tomorrow - a chili championship and rubber duck regatta! Looks like it will be a nice day for an afternoon out.
Our afternoon of bluegrass. Lindy was a big fan!
Little man enjoyed it too.
New cute fall clothes for the babies. Check out the shoes. HOW CUTE! I've just recently discovered baby shoes and it could become a dangerous addiction!
We took an afternoon stroll in a new little wagon. They were so funny. Lindy loved being so close to Will!
It was a little cramped but they had fun in it!
The babies were playing a little game of Simon on our cool new tray today. Look at how straight Lindy's back is.
An example of Lindy sitting up better these days. Also a picture of her new hearing aides, although you can't really see that the bottom is a tan color because there is a plastic piece covering it. Not sure how well you can see the little plastic tube that wraps around her ear either.
Friday, September 12, 2008
Another Week Bites the Dust
Another week has passed us by. This one was a slow week.
Last Saturday we took the babies to their first ever Wake Forest football game. We had debated all week because of hurricane Gustav bringing rain in. It even rained early Saturday morning but it cleared off and became a beautiful day. We cancelled the babysitters and took the kids. It was a little hot for about 45 minutes but then the sun went behind the new Deacon Tower and it was much better. There was a breeze every once in awhile that was nice. The babies did really good. Lindy was, as always, a dream baby. Will did well but he got scared a couple times with all the yelling and such. He had been woken up from a nap and was still tired. He finally fell asleep for a little while in the fourth quarter but woke up to see Sam Swank kick a field goal with 3 seconds left to win the game. What an exciting first game they went to!!
Tuesday Lindy and I went in and met a friend for some Target shopping and lunch. We both enjoyed getting out of the house and seeing Mary Allen and her one year old Tyler. I wasn't brave enough to take two babies and do lunch with them. Hopefully we can have more play dates soon.
Lindy had her Deaf and Hard of Hearing teacher come on Wednesday. She is still pleased with Lindy and her new listening skills. Speaking of her hearing, her audiologist called on Friday with some cool news. The audiologist was talking to the Phonak representative (the brand of Lindy's hearing aides) and they said they have a new, smaller version of Lindy's hearing aides. They said they would switch them with us if we were okay with that. Ummm, yes, we're definitely okay with smaller hearing aides! I can't wait to see if they help at all with the constant flopping. We go this coming week for a hearing test so we'll hopefully get them then.
Friday we went to the hopping town of King for lunch and to run an errand. On the way home we stopped at the park and walked for a little bit. On the way out I saw the baby swing in the playground area. We had to stop and check it out. The kids enjoyed it a lot!
Lindy is continuing to push up on her arms pretty good. I think I've seen her a couple times acting like she is trying to scrunch her butt up a little. Maybe trying to get on her knees? She doesn't get there but she is possibly trying a little bit. Will has been standing a few more times this week. Not for long but small bits of time. I haven't caught any pictures of it yet.
Seriously, it's been a boring week around here. It was rainy and cool so we were cooped up inside most of the week. Next week looks to be much more hectic.
Is anyone still reading my blog?
Lindy 'riding' the bike. She was more interested in the confetti that moved down by the handles.
The side ways picture. It had been awhile since we did one!
I caught Lindy with her leg cocked up again. She'll cock her leg up on about anything!
Our park adventure!
One of my new favorite pictures of Lindy. I love her expression and raised eyebrow!
Weeee!!!
Weeeee!!!
Last Saturday we took the babies to their first ever Wake Forest football game. We had debated all week because of hurricane Gustav bringing rain in. It even rained early Saturday morning but it cleared off and became a beautiful day. We cancelled the babysitters and took the kids. It was a little hot for about 45 minutes but then the sun went behind the new Deacon Tower and it was much better. There was a breeze every once in awhile that was nice. The babies did really good. Lindy was, as always, a dream baby. Will did well but he got scared a couple times with all the yelling and such. He had been woken up from a nap and was still tired. He finally fell asleep for a little while in the fourth quarter but woke up to see Sam Swank kick a field goal with 3 seconds left to win the game. What an exciting first game they went to!!
Tuesday Lindy and I went in and met a friend for some Target shopping and lunch. We both enjoyed getting out of the house and seeing Mary Allen and her one year old Tyler. I wasn't brave enough to take two babies and do lunch with them. Hopefully we can have more play dates soon.
Lindy had her Deaf and Hard of Hearing teacher come on Wednesday. She is still pleased with Lindy and her new listening skills. Speaking of her hearing, her audiologist called on Friday with some cool news. The audiologist was talking to the Phonak representative (the brand of Lindy's hearing aides) and they said they have a new, smaller version of Lindy's hearing aides. They said they would switch them with us if we were okay with that. Ummm, yes, we're definitely okay with smaller hearing aides! I can't wait to see if they help at all with the constant flopping. We go this coming week for a hearing test so we'll hopefully get them then.
Friday we went to the hopping town of King for lunch and to run an errand. On the way home we stopped at the park and walked for a little bit. On the way out I saw the baby swing in the playground area. We had to stop and check it out. The kids enjoyed it a lot!
Lindy is continuing to push up on her arms pretty good. I think I've seen her a couple times acting like she is trying to scrunch her butt up a little. Maybe trying to get on her knees? She doesn't get there but she is possibly trying a little bit. Will has been standing a few more times this week. Not for long but small bits of time. I haven't caught any pictures of it yet.
Seriously, it's been a boring week around here. It was rainy and cool so we were cooped up inside most of the week. Next week looks to be much more hectic.
Is anyone still reading my blog?
Game day babies!
Lindy 'riding' the bike. She was more interested in the confetti that moved down by the handles.
The side ways picture. It had been awhile since we did one!
I caught Lindy with her leg cocked up again. She'll cock her leg up on about anything!
Our park adventure!
One of my new favorite pictures of Lindy. I love her expression and raised eyebrow!
Weeee!!!
Weeeee!!!
P.S. I want to tell Lauren congratulations! After a very long wait, she was finally able to bring her new daughter, Isabelle, home with her from Guatamala this week! We're so happy for you!!
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